One Sunday afternoon and autism.

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It started, as many things do, with something small. A glass of water. I had no idea it would end with a hole in the wall.

Earlier, after a peaceful Sunday afternoon, Eldest attended a swim party. On the way home I asked her to head straight to the shower. Otherwise, Rachel would think we did the unthinkable–went swimming without her.

Rachel knew, though. She can smell chlorine on a year-old swimsuit. At first, she didn’t seem to react beyond babbling more than usual. But with her communication issues, it is hard to tell.

Her frustration became apparent, however, when she stared straight at me and dumped a glass of water into the carpet. Things went darker from there. In less than 10 minutes we had a hurricane in the kitchen–water dripping from the countertops. And a tornado in the closet, complete with a foot-sized hole in the wall.

While I don’t endorse her tantrum behavior, I’ve realized I don’t give Rachel enough credit. Even though she is nonverbal, Rach is far more sophisticated than I realized. I believe she was sending a message: you take Sister to all kinds of fun places and not me.

I wanted to send my own message back: but everything is so difficult when we go places. I still have to chase you sometimes. You make loud noises. I have to be hyper vigilant every second. I feel like autism has taken us hostage. I get so tired.

But life is what it is. No one asked Rach or I how we felt about our situation. So, we have to make the best of it.

Since Rach doesn’t get invited to many parties, I need to do things with her during those moments. It’s difficult because I have my own set of goals to accomplish. Letting the dishes, my blog, the laundry, or other things go makes me feel as though I spent all my time running backwards. But I have to think about how she feels in those times, too. Big sister does seem to go all kinds of places while she sits at home.

Yeah. It stinks. But life has a tendency to hand us all lemons. They may be sour, but lemons are one of the healthiest foods around. And some of the best desserts in life are made with them.

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3 thoughts on “One Sunday afternoon and autism.

  1. Try talking to Rachel about her sister gets to go somewhere, but we will do this or that together. (Just a drive or to a store to get one item. Try giving her hints as to what you are getting and see if she can guess what it is and put it into the cart.) She is way smarter than we ever guessed which is a super humongous thing.

  2. Thanks. I’m just learning about this diet and it’s a bit confusing, especially because I already folllow a low carb, gluten free diet. It’s ahrd to add on one more linmiattoi…I actually live in Brookline, so I may schedule a personal consult with you. I imagine that will help me navigate this a bit more.

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